MARKHAM - OCTOBER 23 - Nurse Susan Cousins preps Johann Kerlow (seated) for her first infusion of Soliris at her home. She has a rare disease and needs access to Soliris for life, but the $500,000 a year drug is not funded by the government. Trillium fund is helping Krantz get the medication. Her first infusion took place on October 23, 2014. (Rick Madonik/Toronto Star via Getty Images)